| 13:21:53 |
MRomaniec |
I have gotten
quite a few comments from the article too. |
| 13:22:03 |
Webmama_Tina |
do people email you about it? |
| 13:22:07 |
Webmama_Tina |
or in real LIFE? |
| 13:22:13 |
Webmama_Tina |
ack, stupid caps lock |
| 13:22:33 |
MRomaniec |
They usually
get my email from TACA , a group in California. |
| 13:22:46 |
Webmama_Tina |
are you in california? |
| 13:23:01 |
MRomaniec |
They refer them
to my email. No, I just moved to Massachusetts. |
| 13:23:13 |
Webmama_Tina |
oh right |
| 13:23:17 |
Webmama_Tina |
how old is your son now? |
| 13:23:28 |
MRomaniec |
Daniel is 5 and
in kindergarten. |
| 13:23:40 |
Webmama_Tina |
and still doing WEll? |
| 13:23:46 |
Webmama_Tina |
argh, well? |
| 13:24:16 |
MRomaniec |
Yes, he is doing very well but
there are always other issues that go on with the kids on the
spectrum. |
| 13:24:38 |
MRomaniec |
In Daniel's case we are still
dealing with his foot deformity caused by the mercury
poisoning. |
| 13:24:53 |
Webmama_Tina |
looking through the article
again...i read it back when i first got the magazine.... |
| 13:25:32 |
MRomaniec |
I understand Mothering Magazine
was at the DAN (Defeat Autism Now) conf. in LA. They passed
out the Sept/Oct issue. |
| 13:26:10 |
Webmama_Tina |
so you attribute your son's
condition with the flu shot you had your 2nd
trimester...correct? |
| 13:26:32 |
Webmama_Tina |
that's interesting to note
because during my last pregnancy my dh kept saying i should
get one |
| 13:26:40 |
MRomaniec |
I think the flu shot and the
measles vaccine I had just before his conception caused him
damage. |
| 13:26:42 |
MOD_Angie |
? lol |
| 13:26:59 |
Webmama_Tina |
go ahead and throw it out there
angie...we're small enough |
| 13:27:01 |
Webmama_Tina |
:) |
| 13:27:28 |
MRomaniec |
I could go on and on about flu
vaccines pushed by doctors. . . :< |
| 13:27:57 |
Webmama_Tina |
now with teh measles
vaccine...that would mean there was residual toxic properties? |
| 13:28:06 |
Webmama_Tina |
oh yes i hear you about the flu |
| 13:28:20 |
Webmama_Tina |
the way i see it, if you are
generally healthy, why do you need the vaccine? |
| 13:28:30 |
MRomaniec |
Yes. Apparently it is common
medical knowlege you should not conceive within a year after
receiving the measles vaccine |
| 13:28:46 |
MRomaniec |
But I was not told and Daniel
was not exactly planned. |
| 13:29:01 |
MOD_Angie |
My nephew was diagnosed with
ASpergers (sp?) and HANES (don't know if it is related?), but
I was wondering where my SIL would start on the diet. |
| 13:29:16 |
MRomaniec |
I would have refused the
vaccine that was INSISTED upon by the nursing staff at the
hospital that delivered my daughter. |
| 13:29:33 |
Webmama_Tina |
oh wow |
| 13:30:01 |
MRomaniec |
For the diet I recommend a
gradual, yet doable approach to implementing dietary
intervention. |
| 13:30:20 |
MRomaniec |
I implemented a 10 week program
for parents who are just grappling with the diagnosis let
alone starting a diet. |
| 13:30:52 |
MRomaniec |
The diet is on the
www.tacanow.com website |
| 13:31:14 |
MRomaniec |
It is also listed under Autism
Today, an online magazine. |
| 13:31:25 |
MOD_Angie |
ok ty |
| 13:31:43 |
MRomaniec |
I have learned this type of
approach works well for any kind of dietary intervention when
it has to become a lifelong thing. |
| 13:32:42 |
Webmama_Tina |
last winter i was pregnant with
my son and the news kept pushing the importance of getting the
flu vaccine...i just didn't feel it was necessary...tend to
doubt media hype anyway, but it just didn't seem right that
pregnant women receive it...and they were saying ESPECIALLY
small children and pg women....how screwed up is thaT??? |
| 13:32:49 |
Webmama_Tina |
of course my dh believes it |
| 13:32:49 |
MOD_Angie |
my other nephew has some form
of autism, but my BIL is too bullheaded to get him checked
out! URGH!! So, my hubby's sister and brother both have a
child with autism, and people don't understand why we don't
vax since it runs in the family. GEEZ! |
| 13:32:55 |
MRomaniec |
Ironically I find many of the
parents I speak to lately have kids who are bi-polar, ADD,
ADHD or other issues, not autism. |
| 13:33:17 |
MRomaniec |
One flu vaccine mercury levels
is equal to 600 cans of tuna. |
| 13:33:36 |
MOD_Angie |
scary! |
| 13:33:43 |
Webmama_Tina |
wow |
| 13:33:46 |
MOD_Angie |
I don't eat that much in a
year! |
| 13:33:55 |
Webmama_Tina |
so mercury is also causing add? |
| 13:34:31 |
MRomaniec |
When the CDC was pressed for
why they advocate women and children to avoid fish but they
PUSH vaccines that contain mercury they answered We were
afraid they would not vaccinate." And this was from a senior
person at the CDC." |
| 13:35:15 |
MOD_Angie |
SAD!! |
| |
MRomaniec |
The increase in vaccines to the
U.S. kids is being correlated with a rise in lots of things.
Barbara Loe Fisher touched on it in her article in the same
issue. |
| 13:35:53 |
MRomaniec |
ADD and ADHD are considered on
the autism spectrum. |
| 13:37:28 |
MRomaniec |
I find myself lately also
speaking to physicians on how to help their child with autism.
Their own colleagues are unable to help or actually ridicule
their efforts. |
| 13:39:11 |
Webmama_Tina |
ugh, i'm copy/pasting some of
this to my dh in icq and he's asking me if maeven is up to
date with shots.....*sigh* |
| 13:39:33 |
MRomaniec |
How old is your daughter? |
| 13:39:42 |
Webmama_Tina |
4 |
| 13:40:03 |
MRomaniec |
The next vaccines she is slated
to get will be the MMR booster and tetanus just before
kindergarten. |
| 13:40:30 |
MRomaniec |
For my typical daughter we had
her antibody tithers tested which showed she was fully
immunized and not in need of further vaccines. |
| 13:40:33 |
Webmama_Tina |
he's asking me what the
difference is between constant mercury level and one-shot big
levels."" |
| 13:40:51 |
Webmama_Tina |
well she's going to be
homeschooled and she's not up to date currently because i've
selectively vaccinated |
| 13:41:20 |
MRomaniec |
It is what is known as the
holistic" approach (as the CDC terms it). They do not count
the micrograms injected into an infant over a period of time .
. .like six months." |
| 13:41:45 |
MOD_Angie |
Tina, why does your hubby think
she needs to be fully vaxed? |
| 13:41:48 |
Webmama_Tina |
my dh has never read up on any
of this...so he's not scared about it like i am |
| 13:41:57 |
MRomaniec |
The average US kid receives six
time more than what is considered safe" for a 150 pound man.
And they receive it by the age of six months." |
| 13:41:58 |
Webmama_Tina |
he's very mainstream in his
medical thinking |
| 13:42:03 |
Webmama_Tina |
he doesn't tend to question the
docs |
| 13:42:18 |
Webmama_Tina |
although i push very hard and i
don't let him NOT be educated....i read him things |
| 13:42:36 |
Webmama_Tina |
6 times more what? mercury? |
| 13:42:55 |
MRomaniec |
I have had to learn the hard
way the US docs are very behind on this issue. And they are
positively intimidated by the AMA, CDC, IOM and NIH into
towing the party line. |
| 13:43:01 |
MOD_Angie |
My hubby wrote an excellent
blog about vax at http://www.data-for-all.com/blog/index.php?p=27 |
| 13:43:08 |
MRomaniec |
Yes, mercury. |
| 13:43:40 |
MRomaniec |
To educate yourselves please
read the book What your doctor may NOT tell you about
childhood vaccines" by Dr. Stephanie Cave." |
| 13:43:54 |
MRomaniec |
I am not giving it to pregnant
women at baby showers. |
| 13:44:23 |
Webmama_Tina |
not or now? |
| 13:44:34 |
MRomaniec |
Sorry, NOW. |
| 13:45:01 |
MRomaniec |
I wish I knew then what I know
now!! |
| 13:45:23 |
MRomaniec |
Not one day goes by when I am
not reminded how my son was injured needlessly. |
| 13:45:37 |
MOD_Angie |
my dh was uneducated about vax
before our 2nd dd, but now he researched A LOT and put it in
his blog.......I think his research stemmed from his 2 nephews
having problems and he didn't want our dd's to have a reaction |
| 13:46:30 |
MRomaniec |
There are some great websites
included 909shot.com, VACinfo.com, and about six others. They
even have the list of what is known as hot lots", meaning
contaminated with LOTS of mercury." |
| 13:46:33 |
Webmama_Tina |
well we don't have any
reactions in our family...but i am so torn because i'm scared
of the vaccines and scared of the diseases |
| 13:47:00 |
MRomaniec |
The thing is Tina, we don't
know the long term on any of this. |
| 13:47:25 |
MRomaniec |
The kids of the 1990's may have
escaped autism, but who is to say their immune systems have
not been compromised. |
| 13:48:00 |
MOD_Angie |
i totally agree, mary |
| 13:48:02 |
MRomaniec |
Toss on lots of antibiotics,
environmental factors and evenutal adulthood and the formula
is different. |
| 13:48:04 |
Webmama_Tina |
that's the thing...its all so
confusing! |
| 13:48:41 |
Webmama_Tina |
the diseases ARE still out
there...and yet i know too much about vaccines to feel they
are safe |
| 13:49:06 |
MRomaniec |
I believe we are facing a long
term epidemic of autoimmune disorders including chronic
fatigue, fibromyalgia, MS, rheumatoid arthritis, ALS,
schizophrenia, etc. |
| 13:50:17 |
MRomaniec |
I mentioned this on the air
with a nationally acclaimed immunologist. She declared I was
absolutely right. She sees a crisis in the US health in the
years to come. |
| 13:51:04 |
MRomaniec |
Let me illustrate a bit. When
you and I were children, how many did you know who had peanut
allergies? Asthma? ADD? ADHD? |
| 13:51:04 |
MOD_Angie |
oh cool |
| 13:51:13 |
MOD_Angie |
no one |
| 13:51:49 |
Webmama_Tina |
dunno...didn't know much about
it |
| 13:51:49 |
MRomaniec |
Exactly. So what happened to
change the dynamic in this generation of kids? What caused
their immune systems to be weaker than the generation of kids
before them? |
| 13:52:14 |
Webmama_Tina |
welcome khrisday! |
| 13:52:18 |
khrisday |
thanks tina |
| 13:52:21 |
Webmama_Tina |
we're casual today, slow chat |
| 13:52:30 |
Webmama_Tina |
feel free to just jump in |
| 13:52:35 |
khrisday |
I haven't been to a chat here
before |
| 13:52:55 |
khrisday |
but I just checked the board
and saw this was going on now |
| 13:53:10 |
MRomaniec |
Do you have a child with autism
or know someone who does? |
| 13:53:19 |
khrisday |
and since I have an 8 yr old
son with Asperger's, I thought I'd check it out |
| 13:53:54 |
MRomaniec |
When was your son diagnosed? |
| 13:54:13 |
khrisday |
he was diagnosed with PDD-NOS
and mild MR at 3 |
| 13:54:18 |
khrisday |
and AS at 4 1/2 |
| 13:54:25 |
MRomaniec |
Are you doing any interventions
for him currently? |
| 13:54:50 |
MRomaniec |
The MR label does not always
fit the Aspergers child. |
| 13:54:54 |
khrisday |
right now we homeschool, and
have just moved so all of his services are on hold |
| 13:55:06 |
khrisday |
he isn't MR- he just couldn't
do the test at the time |
| 13:55:13 |
MRomaniec |
What state are you in? |
| 13:55:34 |
MRomaniec |
I didn't think he was MR. |
| 13:55:35 |
khrisday |
he's already tested in the
normal -high range for IQ |
| 13:55:40 |
khrisday |
we're in California |
| 13:56:13 |
MRomaniec |
Who HOO! Where? I know many
folks and resources in CA. |
| 13:56:18 |
khrisday |
he was in a social skills
therapy program before we moved, but I have been told they
don't have such a thing around here |
| 13:56:38 |
khrisday |
if you knwo of anyone/anything
in the high desert or San Bernadino County- lay them on me! |
| 13:57:27 |
khrisday |
we're in Victorville |
| 13:57:36 |
MRomaniec |
We may have to discuss your IEP
issues privately. And I am VERY familiar with the high desert
area and the Regional Center out there. I will hook you up
with some folks that can guide you. You can email me privately
at MRomaniec@aol. |
| 13:57:48 |
khrisday |
ok- thanks |
| 13:57:58 |
khrisday |
we homeschool so he doesn't
have an IEP |
| 13:58:02 |
MRomaniec |
I am mentoring families in your
area and you're right they have very little in the way of
services. |
| 13:58:22 |
Webmama_Tina |
mary, if my child has never had
a vaccine reaction do you think she's probably fine with
future vaccines? |
| 13:58:35 |
khrisday |
I was shocked when the RC told
me they didn't have a social skills program |
| 13:58:56 |
MRomaniec |
My opinion is get her tithers
checked to determine if she even needs them. |
| 13:59:05 |
MRomaniec |
If not, then avoid the
vaccines. |
| 14:00:12 |
khrisday |
if you think about it- before
they have a reaction, most kids have never had a reaction |
| 14:00:16 |
khrisday |
does that make sense? |
| 14:00:25 |
MRomaniec |
Your child may be absolutely
fine from here on out on all vaccines and antibiotics. But my
experience tells me to avoid both if you can. |
| 14:00:49 |
Webmama_Tina |
ok i'll ask my dr about that |
| 14:00:57 |
Webmama_Tina |
i never got her hep b or
chicken pox |
| 14:01:11 |
MRomaniec |
My son was born with issues but
he went over the top after his MMR and varivax. Then he had a
105 fever and lots of diarrhea. |
| 14:01:23 |
Webmama_Tina |
mmr we got divided up.... M and
then another time the other M and then another time the R |
| 14:01:43 |
khrisday |
my son reacted to the pertussis
vaccine- he got the live one |
| 14:01:46 |
Webmama_Tina |
but now i'm told they cannot
divide them up anymore...not provided that way anymore |
| 14:01:52 |
MRomaniec |
Hep B vaccine is linked with
juvenile diabetes from what I hear. There are pancreatic stem
cells in the Hep B vaccine. |
| 14:02:04 |
Webmama_Tina |
DTP she got together cuz they
don't do it separate...and she's never had a reaction |
| 14:02:06 |
MRomaniec |
Not true. |
| 14:02:30 |
Webmama_Tina |
which part is not true? |
| 14:02:38 |
MRomaniec |
Not true on the dividing of
vaccine availability. It is available. Doctors are remiss to
bring it in because it costs more. |
| 14:02:41 |
Webmama_Tina |
hi andrea! |
| 14:02:52 |
khrisday |
the doctors like to say they
can't" get things separate, when in fact they may not stock
them in their ooffice but they coudl be ordered" |
| 14:02:58 |
Andrea |
hi! Strike two on this chat for
me, huh? |
| 14:03:08 |
Webmama_Tina |
i have a really awesome doc, so
i'll have to ask him about that |
| 14:03:12 |
khrisday |
hi andrea |
| 14:03:14 |
Webmama_Tina |
lol andrea |
| 14:03:15 |
MOD_Angie |
Health Depts have the divided
shots |
| 14:03:31 |
Webmama_Tina |
my ped totally supports people
who don't vaccinate |
| 14:03:40 |
MOD_Angie |
that is gr8 |
| 14:03:41 |
MRomaniec |
You can even go online and
research the availability of vaccines in single doses. It is
there. |
| 14:03:43 |
Webmama_Tina |
my dh wants to go to him and
ask him what he thinks we should do |
| 14:03:46 |
khrisday |
my dd hasn't had any vacs |
| 14:04:00 |
MOD_Angie |
my family sees a PA, and she
supports our parenting decisions |
| 14:04:08 |
khrisday |
and we were kicked out of one
ped's practice for that |
| 14:04:10 |
Webmama_Tina |
well, my goodness, just when
its time to end we finally get people in here, lol |
| 14:04:13 |
Andrea |
I think we have the same doc,
Tina? let me know what he tells you to do...we dont plan on
vaxing Piper for a while but... |
| 14:04:16 |
Webmama_Tina |
mary, do you need to go? |
| 14:04:30 |
Andrea |
I had a parent teacher
conference at Gavin's pre-k..sorry! |
| 14:04:32 |
MRomaniec |
In Dr. Stephanie Cave's book
she has a recommended schedule for vaccines. |
| 14:04:39 |
MRomaniec |
No. |
| 14:05:27 |
MRomaniec |
In the UK a full 25 percent of
the population no longer vaccinates. |
| 14:05:31 |
khrisday |
oh- if anyone wants a great
website with a message board and chats- check out
www.bbbautism.com |
| 14:05:37 |
Webmama_Tina |
well this has been a casual
chat since we didn't have anyone here til just recently...so
y'all can just throw out your questions to mary and mary just
let us know when you need to go? |
| 14:05:43 |
MRomaniec |
Now they are having a measles
epidemic and the population still won't vaccinate. |
| 14:06:07 |
MRomaniec |
No problem. |
| 14:06:09 |
Webmama_Tina |
so what do you suggest mary?
about vaccinating? selective? |
| 14:06:37 |
MRomaniec |
In a genetically predisposed
child, avoid vaccines. |
| 14:06:50 |
Webmama_Tina |
i hear that....but i don't seem
to have one |
| 14:06:55 |
MRomaniec |
Geneticially predisposed can be
anyone who has autoimmune in the genetic background. |
| 14:07:19 |
khrisday |
what about mental health
issues? woudl you consider that also predisposed? |
| 14:07:40 |
MRomaniec |
Also, avoid vaccines at birth
and prior to six months of age. Challenge why your child needs
HEP B before he/she is a sexually active teenager. |
| 14:07:44 |
Webmama_Tina |
so far she's never even had any
of the normal" reactions...much less severe...and i don't know
of anyone in our family that reacted...but then we don't
really know cuz no one really paid attention before...but
there's no autism in our family at least that i know" |
| 14:07:46 |
khrisday |
so anyone with allergies in the
family woudl be considered predisposed, right? |
| 14:08:06 |
MOD_Angie |
Measles and Rubella aren't
really that serious of diseases. I have done TONS of research
this past few weeks cuz we are thinking my dd had one of 2. I
thought to myself well if she had Measles or Rubella that is
gr8 cuz now she has natural immunities. |
| 14:08:08 |
Webmama_Tina |
yeah i said no to hep b |
| 14:08:12 |
Webmama_Tina |
and chicken pox |
| 14:08:26 |
MRomaniec |
Not sure. It depends on the
mental health condition. I have noticed a correlation in ADD,
ADHD, bipolar and schizophrenic adults. |
| 14:08:41 |
Andrea |
Gavin had a pretty rough
delivery. lots of pitocin, LOTS of drugs..after his three mo'
shots, he started having sensory problems. Am I crazy to think
his delivery made him pre-disposed? |
| 14:08:44 |
Webmama_Tina |
my dh had severe allergies as a
child |
| 14:08:46 |
MRomaniec |
I would say no to chicken pox
too but that is up to you and your family. |
| 14:08:48 |
Webmama_Tina |
but my dd never has |
| 14:09:22 |
MRomaniec |
NO, you are not crazy. My son
had the same and came out with sensory issues. He was also
exposed in utero to mercury. |
| 14:09:45 |
Andrea |
I've always blamed" his
delivery for starting all of this." |
| 14:09:46 |
khrisday |
I was told that sensory issues
cna be a part of Post TRaumatic Stress Disorder |
| 14:10:07 |
MRomaniec |
BTW, I had measles three times
as a kid and two measles vaccines. I still have no tither and
am considered health. |
| 14:10:21 |
MOD_Angie |
REALLY?? How weird? |
| 14:10:25 |
MRomaniec |
Sensory issues are also a
symptom of mercury poisoning. |
| 14:10:47 |
Andrea |
Its amazing how many mercury
poisoning symptoms are EXACTLY THE SAME as Austism symptoms. |
| 14:10:52 |
khrisday |
yes- which woudl make sense in
my daughter's case since she had surgery without anesthesia
when she was less than 24 hours old |
| 14:11:23 |
MRomaniec |
Surgery for what? |
| 14:11:47 |
khrisday |
she had Extra Corporeal
Membrane Oxygenation |
| 14:12:08 |
khrisday |
because she coudln't get enough
oxygen |
| 14:12:09 |
MRomaniec |
I also have know kiddos who
were possibly poisoned with mercury by mom's dental
appointment. Mom may have swallowed part of the amalgams. |
| 14:12:56 |
khrisday |
it's a last ditch treatment for
very severe meconium aspiration |
| 14:13:06 |
Andrea |
so I held off on dd1's vaxes...she's
3.5, and we're almost caught up now. DD2 (six months old
tomorrow) hasnt had any. I'm not sure if its genetic or
environmental, afraid to take chances. |
| 14:13:18 |
MRomaniec |
Wow, is she affected too? |
| 14:13:23 |
khrisday |
where they cut a vein or artery
and bypass the heart/lungs |
| 14:13:53 |
MRomaniec |
Tina, to illustrate your
question about adult immune issues let me tell you about my
brother. |
| 14:13:54 |
khrisday |
she has sensory issues, and
very minor thigns- we have been told it's PTSD and a few other
things |
| 14:14:10 |
khrisday |
but not like my son- and she
has never had and vaxes |
| 14:14:16 |
Webmama_Tina |
forgot to say...welcome, ladies
to this week's mothering magazine sponsored chat....our topic
today is curing autism with diet, with guest speaker mary
romaniec, author of daniel's success story" in the sept/oct
issue of mothering" |
| 14:14:18 |
MRomaniec |
As a child he was ADD or
something like it. At 18 he went into the ARMY and received 11
vaccines in one day. |
| 14:14:40 |
Webmama_Tina |
since this is a casual chat
today with very few chatters, feel free to just throw your
questions out there and mary can answer as we go |
| 14:15:07 |
Webmama_Tina |
we're already past the time of
the chat, so we are just continuing as long as mary is
available...when she's got to go, we'll pack it up |
| 14:15:08 |
candipooh |
talk to me about dental....I
might be pregnant (i am waiting for a + test) and I am going
to the dentest |
| 14:15:17 |
MRomaniec |
After he got out he had chronic
fatigue syndrome and gut issues. Later he was diagnosed with
schizophrenia and a heart malady associated with mercury
poisoning. He had a heart attack at 38. |
| 14:15:37 |
Andrea |
Oh my gosh. |
| 14:15:40 |
MRomaniec |
Just ensure they use a rubber
dam if they work on your fillings. |
| 14:15:41 |
khrisday |
just another reason to love the
army, eh? |
| 14:16:19 |
Andrea |
thats just downright scary |
| 14:16:27 |
MRomaniec |
I heard on the radio just
yesterday they (AKA US govt) have finally decided Gulf War
Syndrome might be associated with the vaccines our soldiers
received. |
| 14:16:55 |
Andrea |
hmm...ya think? *major eyeroll
at them"*" |
| 14:17:02 |
MRomaniec |
I kept hearing about Saddam
Hussein's gases, etc. and knew they were looking everywhere
but the obvious place. |
| 14:17:30 |
MRomaniec |
And our recent group of
soldiers endured even more vaccines than the first. |
| 14:17:38 |
khrisday |
it's those lurking WMD's |
| 14:17:45 |
Andrea |
so sad. |
| 14:17:53 |
Webmama_Tina |
i grew up in the military...we
had to have the dtp shot twice within a short period of time
when we were getting read to go to okinawa...because they lost
our records |
| 14:18:07 |
Webmama_Tina |
my bro and my arms swelled up
like balloons and hurt tremendously |
| 14:18:20 |
Andrea |
Oh my gosh, Tina! That's
ridiculous. |
| 14:18:22 |
Webmama_Tina |
i remember wearing a sling to
school and flinching whenever anyone came near |
| 14:18:29 |
Webmama_Tina |
i was about 11 |
| 14:18:35 |
Webmama_Tina |
my bro was 9 |
| 14:18:38 |
Andrea |
:< |
| 14:18:41 |
MRomaniec |
Again, tithers can be a godsend
in cases like this. Like the families in New Jersey who
recently had to go to court to not have their kids vaccinated
again after the school lost records. |
| 14:19:23 |
Webmama_Tina |
oh my mom is here and she is
telling me it was yellow fever and typhoid , not dtp |
| 14:19:30 |
MRomaniec |
I know we were supposed to
discuss diet and the such so perhaps I can at least share some
nutritional suggestions when it comes to vaccines. |
| 14:19:34 |
Andrea |
I just enrolled the kids in
pre-k, and was told I was the only mother they had ever heard
of that didnt vax on schedule. They made a huge deal out of
it. |
| 14:19:46 |
Andrea |
Sounds good.. |
| 14:19:58 |
MRomaniec |
Increase Vitamin C and selenium
before the dental exam and before any vaccine. |
| 14:20:17 |
Webmama_Tina |
and yes we did have to have it
twice because they lost the records |
| 14:20:22 |
MRomaniec |
This should help with the
detox. |
| 14:20:30 |
Webmama_Tina |
she says there was a week in
between having them |
| 14:20:50 |
MRomaniec |
That's not good. |
| 14:21:03 |
Andrea |
how much C and selenium? Say,
for a four year old? |
| 14:21:06 |
Webmama_Tina |
yeah it HURT |
| 14:22:02 |
MRomaniec |
Increase Vitamin C to at least
1000 mg both before and after the procedure. I am not sure on
selenium but I can tell you it will be above RDA. |
| 14:22:19 |
Andrea |
thx |
| 14:23:06 |
MRomaniec |
The main thing I wanted to
share with the group about autism is that it is treatable. My
son proved it. |
| 14:23:32 |
MRomaniec |
He may be the exception to the
general rule but I am remiss to tell any parent their child
may not be like mine. |
| 14:23:36 |
Webmama_Tina |
that's very good to know |
| 14:23:51 |
khrisday |
how old is your son now? |
| 14:24:09 |
MRomaniec |
I still cry when I hear how
parents are told lifelong disorders"." |
| 14:24:14 |
Webmama_Tina |
i saw a tv show on curing
autism a LONG time ago where they cured a little boy by doing
repetitive therapy with him.... |
| 14:24:14 |
MRomaniec |
Daniel is 5. |
| 14:24:38 |
MRomaniec |
That is one method but an all
out attack on the disease works best in my opinion. |
| 14:24:53 |
MRomaniec |
We call it the three-legged
stool. . .diet, biomed and behavior therapy. |
| 14:25:00 |
Webmama_Tina |
locked themselves in a bathroom
they converted into a small workspace and just worked one on
one with him for months and months and months....not sure how
true the show was....but always made me curious if that was
possible |
| 14:25:01 |
Andrea |
what do you recommend for
children who have severe oral aversions? I cant get Gavin to
eat much of anything, unless its crunchy (aka gluten) |
| 14:25:07 |
khrisday |
that's what we did with our son |
| 14:25:13 |
MRomaniec |
What diet, what biomed and what
behavior therapy is up to how it works with the kiddos. |
| 14:25:15 |
Andrea |
yeah, Tina, it was like ABA...I
do that w/ Gavin |
| 14:25:33 |
Webmama_Tina |
so that actually works? |
| 14:25:45 |
MRomaniec |
Gavin may be addicted to the
effect of the gluten, not the flavor. |
| 14:25:50 |
Andrea |
but not strict ABA...its very
customised, and much more gentle than aba |
| 14:25:54 |
Webmama_Tina |
they said they were trying to
break into their world or something....it was decades ago, i
don't remember the details |
| 14:25:55 |
MRomaniec |
You can bread and fry
non-gluten food too. |
| 14:26:05 |
Andrea |
so how do I get him to eat
without throwing everything up |
| 14:26:07 |
khrisday |
it must have been about the son
light program |
| 14:26:09 |
MRomaniec |
Was it SonRise? |
| 14:26:10 |
khrisday |
sounds liek it |
| 14:26:21 |
Webmama_Tina |
son light? |
| 14:26:22 |
khrisday |
there ya go- son rise not son
light |
| 14:26:27 |
Webmama_Tina |
sonrise? |
| 14:26:28 |
Webmama_Tina |
lol |
| 14:26:32 |
Webmama_Tina |
what's that? |
| 14:26:37 |
MRomaniec |
If he is throwing everything up
then you have other issues. |
| 14:26:49 |
MRomaniec |
SonRise is a program based out
of Massachusetts. |
| 14:26:54 |
khrisday |
wwww.gfcfdiet has really good
resources |
| 14:26:56 |
Andrea |
I guess what I mean is that if
an aversive texture hits his mouth, he gags. |
| 14:27:08 |
MRomaniec |
The kid recovered" with intense
behavior therapy and some dietary restriction." |
| 14:27:08 |
Andrea |
not that he's throwing
everything up |
| |
MRomaniec |
Gavin also needs OT therapy for
his oral aversions. |
| 14:27:26 |
khrisday |
my son used to gag at anythign
wet, too |
| 14:27:34 |
Webmama_Tina |
hmm, maybe that's what it
was...i think they did a lot of rocking and spinning plates
with him and stuff like that |
| 14:27:38 |
MRomaniec |
Very common in the ASD child |
| 14:27:39 |
Andrea |
he gets ot, but nw oral therapy |
| 14:27:45 |
MRomaniec |
Yes, that is SonRise. |
| 14:27:51 |
Andrea |
ooops..not oral therapy |
| 14:27:53 |
khrisday |
yeah- they just did whatever he
was doing at first to get him to notice them I hear |
| 14:27:57 |
Webmama_Tina |
oh ok so it does actually exist |
| 14:28:12 |
Webmama_Tina |
it was a tv movie so i didn't
know if it was true |
| 14:28:13 |
MRomaniec |
Yes, it exists. |
| 14:28:23 |
khrisday |
the oral can be addressed in
his OT if it's sensory, and also in speech therapy |
| 14:28:28 |
Andrea |
because its through the school
district, they wont do oral therapy. |
| 14:28:35 |
Andrea |
but he does get OT twice a
week. |
| 14:28:35 |
MRomaniec |
I got an email from the boy"
who is now a man. He is a Phd in psychology." |
| 14:28:43 |
Webmama_Tina |
wow |
| 14:28:44 |
khrisday |
have u talked ot the OT about
it? |
| 14:29:23 |
khrisday |
he doesn't need a separate kind
of therapy, they just need to address it in his exhisting
sessions |
| 14:29:23 |
Andrea |
yep. they werent much help, and
said they were to focus more on fine/gross motor coordination
(he cant ride a tricycle or hold a pencil correctly for
example)..he does get some tactile stuff in |
| 14:29:24 |
MRomaniec |
School districts are supposed
to provide oral motor therapy and aversion therapy. If the
child cannot EAT, he cannot LEARN. |
| 14:29:44 |
khrisday |
call an IEP |
| 14:29:45 |
Andrea |
that's EXACTLY what I told them
this morning in a meeting. EXACTLY. |
| 14:29:58 |
MRomaniec |
If they do not have a qualified
person on staff then you need to get treatment elsewhere but
notify the school district they need to pay for it. |
| 14:30:10 |
Andrea |
He comes off the bus crying
every day simply because he's hungry. |
| 14:30:19 |
khrisday |
that's really not good |
| 14:30:32 |
Andrea |
he loves school, and learns
quickly, but the food is a constant battle. |
| 14:30:40 |
Andrea |
so what should I remove from
his diet at home? |
| 14:30:52 |
Andrea |
I know, its heartbreaking. |
| 14:30:55 |
khrisday |
I would add new thigns before
taking anythign away |
| 14:31:05 |
khrisday |
that was what worked for us |
| 14:31:09 |
Andrea |
like what? |
| 14:31:14 |
khrisday |
gfcf foods |
| 14:31:24 |
khrisday |
if that is what you're trying
to eliminate |
| 14:31:28 |
MRomaniec |
Yes, he definitely needs
intensive OT for his oral issues. A doctor can write a note to
that extent too.l |
| 14:31:36 |
khrisday |
www.gfcfdiet.com has a great
guide |
| 14:31:39 |
MRomaniec |
Remove dairy first. |
| 14:32:02 |
Andrea |
oh really? I'll have to talk to
his ped. We just added Gavin to that practice. Dairy wont be
an issue. he doesnt eat any really, anyway. |
| 14:32:11 |
khrisday |
I woudl find gfcf alternatives
to what dairy he's eating now, and remove the dairy first yes |
| 14:32:25 |
Andrea |
except perhaps hidden dairy,
but after being vegan , I know what to look for. |
| 14:32:32 |
MRomaniec |
Go to www.tacanow.com and click
on the GFCF section. There is a 10 week calendar there that
will explain how to implement GFCF without going insane. |
| 14:33:01 |
MRomaniec |
Sorry peds' do not understand
dietary intervention. |
| 14:33:13 |
Andrea |
adding both sites to favorites |
| 14:33:24 |
Andrea |
oh no, I mean I'll talk to him
about the OT script. |
| 14:33:44 |
MRomaniec |
I also have a Trader Joes
grocery list of GFCF kid friendly foods. Do not attempt this
all at once. It will not be good for your child or you. |
| 14:34:06 |
khrisday |
gfcfdiet has printable lists,
too |
| 14:34:11 |
khrisday |
those are really helpful |
| 14:34:12 |
MRomaniec |
Make sure to increase calcium
as removal from dairy depletes it. It can cause eye stemming. |
| 14:34:38 |
Webmama_Tina |
mary, you are welcome to
continue as long as you like...but did you want to make a
cut-off time? |
| 14:34:38 |
MRomaniec |
I would also recommend an epsom
salt bath every night to help with detox. |
| 14:34:53 |
Andrea |
taking notes... |
| 14:35:00 |
Webmama_Tina |
i need to get going, but since
this is so casual now, i'm ok with leaving y'all to continue
without me |
| 14:35:10 |
Andrea |
talk soon, Tina! :) |
| 14:35:12 |
MRomaniec |
Yes, I actually should go soon
but would be happy to have anyone correspond off list
directly. |
| 14:35:16 |
Webmama_Tina |
and the transcripts will email
to me tonite and i'll post them when i can |
| 14:35:20 |
MRomaniec |
MRomaniec@aol. |
| 14:35:21 |
khrisday |
I already emaile dyou |
| 14:35:33 |
Andrea |
that would be great... |
| 14:35:40 |
khrisday |
and, yes I know I have a lot of
typos lol |
| 14:35:52 |
Webmama_Tina |
oh ok if you need to go then
i'll stay and close up shop |
| 14:35:59 |
MRomaniec |
I will see all of you later. |
| 14:36:07 |
khrisday |
thanks for taking the time mary |
| 14:36:13 |
Andrea |
Thanks Mary!! |
| 14:36:26 |
Webmama_Tina |
thanks all! |
| 14:36:38 |
Webmama_Tina |
it ended up being a productive
chat afterall! :)_ |
| 14:36:56 |
khrisday |
yep! |
| 14:37:03 |
Webmama_Tina |
take care! |
| 14:37:09 |
khrisday |
bye bye |
